Second, it involves a circulation: of legitimate suffering, between diseased and care-giving bodies.Ĭohen notes an ‘exchange of symptoms – the body of the caretaker for the body of the Alzheimer’s patient’, and observes how families were seen as being victimised by patients and their care. In 1998, Lawrence Cohen identified the practical knowledge of Alzheimer’s disease in the American and Western European context to be organised around two manoeuvres:įirst, it involves an iteration of its pathology as opposed to its normality, despite the lack of a cure. The fullness of who I once was will be seen in the simplicity of who I am within, surrounded by layer upon layer of memories. I can still think, talk, walk, write and do almost anything I want. I am just not like most of the Alzheimer’s patients I read about. I could not see where any of it applied to me. There was a lot of good information there, but it was mostly for caregivers. The 36-hour Day was about the best one I read.
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